First, thank you all so much for your kind comments and emails. It means so much to me and just reminds me how good it truly is to be able to connect with you. You're all so wonderful!!
and now the nonsense continues...
Driving back to Dallas Thursday night, I noticed that my right boob was starting to hurt and I had a BB-sized nodule of pain under my right arm. Yup, the right bazooka decided to join the pain party and the left one, no longer the center of attention, packed up its toys and left. I thought I was going nuts - how could the pain migrate like that? Around 9pm, the doctor from the cancer center called to tell me it is definitely absolutely not cancer. "Cool. What is it then?" I asked him. "Fibrocystic changes," he told me. That's a fancy way of saying 'your body is retarded and I have no idea what the hell is wrong with you.' He wants me to do a follow-up mammogram in a month with a breast surgeon here in Dallas. Awesome.
Today I have no pain in either breast, the lymph node is still there but it's nowhere near as tender to the touch. I have no idea when my period is supposed to start, so I can't tell if the slightly achy feeling I have is due to that or my mind is playing tricks on me. When you're trying to conceive, the slightest twinge, ache, snap, crackle and pop is noted and questioned. Is my period coming? What kind of cramp was that? How would that be classified? Is it nothing? Is it something?
Cut to Friday afternoon, where Drew and I visited with the fertility specialist. He's the same one I went to when I got my FSH results and I didn't end up going back because I turned out to be pregnant. I didn't feel my OB was being aggressive enough with a treatment plan/plan of action post-miscarriage number two, so I didn't wait for the referral and made the appointment myself. This time I wasn't leaving without some answers or at least a plan - something better than heparin shots, or as I like to call them 'I ain't sticking my uterus unless you're 1000% positive I have to.' Yet, I have a sense of futility because there is still no real way to figure out the true cause for the miscarriages and it still could be just really really horrible terrible awful bad luck. He could do all these tests and still come up with nothing. However, I do feel better being under the care of a specialist, knowing his sole reason for working is to help women get pregnant.
His plan is to cross everything off the list in the order of least- to most-invasive. This means drawing my FSH again, checking my tubes to ensure that they're completely open, checking the uterine cavity and doing an endometrial biopsy. Even though I've been pregnant three times, with two recent losses he wants to leave no stone unturned. There is a small possibility that I have scar tissue in my uterus, preventing proper implantation or that my uterine lining doesn't get thick enough to properly hold an embryo. When you think about all the places that a pregnancy can go wrong, you start to wonder how in the world it ever goes right. The miracle of life indeed.
In the meantime, I'm looking into ways to get over my fear of needles. It's horribly inconvenient, I hate the helpless feeling and if these appointments are any indicator of the future, I'm going to need to become best friends with the needle.
Unfortunately, I feel like I'm going deeper into battle and my conviction is no stronger. I still waver between wanting children and being ambivalent. The 'no' is not present, it's just the 'yes' is so weak. I'm doing the tests because I feel like it's the responsible thing to do. What if there is a medical cause for the losses and it can be fixed? I couldn't be satisfied with not doing it. But if all these tests find nothing? I still can't say that I'm gung-ho ready to jump to the next stage - whatever that may be.
I keep reminding myself that this is not my timetable, that I'm not in the driver's seat here. Events will unfold according to a purpose much higher than mine. I remind myself of that because I get so scared. I'm scared that since I'm not desperate for a baby, willing to do anything under the sun right now, that must mean I'm not meant to be a mother. I'm scared that Drew and I will become an infertility/trying to conceive statistic and we won't make it and then I won't have a husband or a baby.
And then I HAVE to stop because I can hear the whistle for the Express Train to the Loony Bin coming for me.
I know I'm stronger than this. I can overcome my fear of needles. I can decide how far I will go with this and whatever is meant for me I will accept with grace and courage. I can do this.
I may just need a reminder now and then. You know, when I get scared.
Be brave! The needles are going to help!! Hopefully these doctors can get everything figured out for you! And soon!!! :)
ReplyDeleteSo, I'm not a regular poster and I don't have a blog, but I read yours almost daily and wait for the next chapter that you write as if I'm reading a book. Only, I'm not reading a book, I'm reading real life struggles, a memoir if you will, of someone I don't even know, but who I can relate to. Thank you for sharing your life with so many and for being transparent.
ReplyDeleteNeedles ~ I once feared the needle too, but then my doctor called me up one day and said, "Well, we got the tests back and you have Type II Diabetes"...fear of needles, gone. You do what you have to do to get over it and get on with life. I have faith that you'll be able to move past this fear too, just remember to breath. I always make jokes when they come to take my blood, it's my way of "getting through it". In the end, I realize I've made much about nothing and I "survived" the stick. Momentary sacrifice for long term gains, right?
On becoming a mommy; steady the course, it will be worth it in the end when you're holding that precious little life in your arms.
Hang in there Desiree...
I just wanted to tell you how much I admire your strength and ability to share despite all your little body has been through. I can't imagine. But without love and faith, what else is left, right?
ReplyDeleteI was diagnosed with endometriosis in high school and through all the insane pain, surgery and going through a chemical menopause TWICE all I could think about is whether or not I would be able to have a baby. Here I am, 5 years later and my endometriosis is gone (for now at least) and I have found the love of my life. But, that fear is still within me...no one can tell me if I'll be able to conceive until I try. I had to have a conversation with my boyfriend about the fact that we may not be able to have children. Luckily, he is wonderful and loves me and will stay with me no matter what.
I guess in a very long way I'm trying to say that to some small degree I understand where you're coming from...fear wise. And I totally get the needle thing...I have a panic attack every time I get a shot. Nurses hate me. I have absolutely no advice for you, but I get ya!
I can tell from reading your wonderful blog that you're strong....so hang in there!
Thanks Carolyn - I hope I have some good news soon!
ReplyDeleteAnonymous - See, YOU'RE the reason why I didn't turn off anonymous comments. Thank you so much for your kind words of encouragement and for keeping me in your thoughts. You're right - when it comes down to it, you do what you have to do, fear or not.
Kristin - Thanks so much for the good words and having a supportive significant other makes all the difference in the world! I'm keeping my fingers crossed for you!
Your journey is your journey. Tackle each test, needle, pill, doubt as an isolated event. Don't look at the sum of all of these, but at each one individually when the time comes. It makes it easier. You're strong. You CAN do this.
ReplyDeleteI definitely think you are a woman of great strength! Stay encouraged ***e hugs***
ReplyDelete