Friday, April 1, 2011

Final hurdles

I don't like April Fool's.  I don't think it's nice or fun to trick people, to prank them or otherwise deceive them, no matter how innocent you think it is.  One of the few things we have in this world is our integrity and with all the fakers out there, we could all stand for a little more authenticity.


I also don't like the word/concept of 'normal.'  There is no such thing.  I understand that we have to have a standard, something to follow, a foundation for guidelines, but that doesn't mean that falling outside the guidelines means there's something wrong with you.  Especially when it comes to people - none of us are normal and that's what makes us all beautiful.


But boy, I sure do wish this was all an elaborate April Fool's joke and that I were normal.


I'm 38 weeks today.  One week past full-term.  I'm fully cooked and then some and that is a beautiful thing.  I went to the doctor today and had my very first non-stress test and my doctor pronounced my strip 'beautiful.'  The baby was merrily kicking, I still haven't hit 150 pounds, I think it's safe to say the cankles demons have passed me over and overall I'm feeling pretty good.  I'm feeling the effects of the relaxin hormones and my left hip feels like it's going to fall out of joint any minute but even that isn't bringing me down too much.
38 weeks, and probably the last of my
bathroom belly shots.

However, I'm not 'normal.'  I have been lulled into thinking that I was, because of the above things.  Additionally, I haven't swollen up with high blood pressure, I don't have group B strep, my iron levels are good, the baby has been growing on schedule and the shots have been integrated into my life in such a way that most days I barely notice them.

I began to think I was normal.

It's just that women with 'normal' pregnancies don't have to take shots.  Women with normal pregnancies don't usually have multiple losses.  Normal doesn't mean two clotting disorders.  I forgot that part.

I chose to focus on the happy, the good parts, even writing about my choice to focus on the positive and leave the negative behind.  However, all the positive thinking in the world doesn't change the fact that I have clotting disorders and without treatment I cannot carry a pregnancy.  Furthermore, the shots are not a cure.  If I stopped the Heparin, in about 12 hours my body would pick up where it left off 38 weeks ago and start producing the clotting antibodies that caused my last two losses.

Ironically, what my body does?  Attacking foreign bodies to preserve the host - that's 'normal.'  Pregnancy is the only time in our lives that our body allows something foreign to grow inside of us, taking the resources and nutrients from our bones and cells.  It's this intricate dance of hormones and trickery that allows a process that produces teeny tiny feet to put in teeny tiny socks.  There's no such thing as normal. 

But somehow, somewhere I forgot that.  I got caught up in the ride, telling myself that I was like every other 'normal' pregnant woman.  I watched the serene, calm, beautiful quiet home-birthing videos and told myself that I too could have that.  Maybe not the homebirth part, but everything else.  I forgot that I have to see a maternal-fetal-medicine specialist for monthly ultrasounds to make sure that my clotting factors aren't causing growth restriction.  I forgot that there was a reason for my losses, that I didn't have extraordinarily bad luck.  I forgot that these clotting disorders are nasty, that despite the shots, I'm still at risk for late-term fetal demise and stillbirth. And that's not anecdotal information - everywhere you look, it says the same thing.  Over and over and over and over and over and over again.

Today, I remembered.  Or rather, I was reminded.

I have to be induced.  The risks of my clotting disorders outweigh the benefits of leaving the baby inside and I'm going to be induced before my due date.  April 11th.  That's as far as my specialist is willing to go.  That's the biggest risk he's willing to take.  Because I'm not normal.

I burst into tears when my OB told me, crying out "You're going to cut me open!  If my Bishop's Score is zero, an induction won't work and you'll have to cut me open!  You're going to give me a 'failure to progress' and you're going to to cut me open!!  I'm not swelling up, my blood pressure is fine, the baby is fine, I'm fine!"  But it's none of those things - it's the clotting.  The one thing I can't do anything about.  The one thing that makes everything else somewhat irrelevant. 

That's the thing - I trust my specialist and I trust my OB.  That's what makes it so hard - when someone you trust tells you something you don't want to hear, what are you supposed you do?  Of course, I wanted to get a second opinion but even *I* know my sole purpose would be to simply find someone who'll tell me that I'm normal, that my clotting disorders aren't that bad and that I can do this like every other pregnant woman.  It's not because I think my doctors are misinformed or that they are giving me bad information.  If that were the case, I would have switched doctors a long time ago.  No, I just don't like what they're saying and that's not a valid reason to go traipsing around town, looking for someone to blow sunshine up my butt.

I know I'm in good hands because my OB is amazing.  She knows me, she knows what I want and repeatedly said that we're going to work together to make this happen, that she's not going to be aggressive and that she's going to give me a good solid trial of labor, meaning intermittant monitoring, no breaking of the waters, movement, food, all that.  She hears me and she's going to work with me.  Most importantly, I believe her.  I know she's going to do everything possible to help me have the birth I want, within these parameters of 'high risk.'

Right now, I'm still working through things.  I'm trying to tell myself that it's still going to be okay, that the final hurdles seem the highest, the most daunting.  That it's always darkest before the dawn, all that crap.  That I have the strength to make this into a positive situation, that all is not lost.

I'm still working on that part.

29 comments:

  1. You have to stay the course of positivity. Even through induction, you could have the birth you want. Even IF you were without the clotting disorder, you could still have the same issues of a "normal" pregnancy (and I use that term loosely only because you used it) and be 'cut'. No birth plan is guaranteed.

    I've been induced with all four of my children (always wished I'd gone through natural labor but just didn't happen- what can i say, my kids don't want to leave. hahaha) and I was 'normal'. No C-section on any, but regardless, the end result - the ONLY THING that really matters after all is said and done - is a healthy happy baby and mommy.

    And that's JUST what is going to happen. Don't ever question it. Just know. :) You better be smiling and thinking about holding that baby. You are only DAYS away! Natural, induced, C-section, vaginal, surrogate, matters not. Agent S is on the way!

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  2. Listen to Rania! That girl sounds like she knows what she's talking about! :)

    Now, I have never had a baby. I've never had to deal with any of this. But. I still have faith. It's going to work out. Maybe you'll have to get induced. Maybe you'll have to get a c-section. Those are both possibilities. But it's also possible that you'll go into labor before April 11th. They are all possibilities. They are all "normal" ways to have a baby. And no matter how you have her, Sofia is going to be WAAAAAAAAAAAAAAAAAAAAAAAAAY better than normal. That little girl is a miracle. Who wants normal when you can have a miracle? :)

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  3. I wish you the best...and your right, I cant STAND april fools....

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  4. Oh yeah, forgot. You look AMAZING. :) Just thought you should know.

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  5. I can't give words comfort from experience but I can relate to the not normal part and forgetting that sometimes you are not in fact normal. It's hard, but you'll make it thru and so will she.

    Chin up butter cup. She is going to be here in 10 days!!!

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  6. I've been lurking here for a while, because, well, I'm still in the loss phase of my journey, and I don't have much to say about pregnancy. But I've been following along because, long before I started having miscarriages I had planned a home birth, and yours is the first blog I have found of someone who is trying to keep her pregnancy and birth as normal as possible when dealing with a high risk situation. I don't know how you do it, but I really admire you and I hope I can do half as well at holding on to *some* of my birth preferences, even while I have to let go of others. That is, assuming I am able to figure out a treatment plan that will allow me to carry a pregnancy to term.

    So thanks for your open, honest blog. I followed the links to your previous posts. It really helps to read your back story as well.

    Hope
    InvisibleMother.blogspot.com
    tls_with_woman@yahoo.com

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  7. 10 days! 10 days til you meet your girl. Yes, focus on the positive because there is nothing you can do about it. You could not have changed this and it is not your fault. You have done an amazing job keeping her safe for the last 9 months, now maybe it is time to let your docs take over and keep both of you safe:o) TEN DAYS!

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  8. I have never posted a comment on a blog. After reading your post I had to. I have a six month old named DREW who is the love of my life. I had an induction and the one thing my OB always reminded me "You are leaving out the hospital as a mommy like everyone else. It doesnt matter how the baby gets here as long as they get here safely." Btw the scar isnt bad and I in no way feel deprived. The love you have for your baby girl cannot be put in words. You think you love her now you just wait! You have had a long journey so sit back relax and enjoy the ride.
    Sylvia

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  9. I've never had kids either, I have a stepson. You have been incredibly strong and I will continue to send prayers up and positive, supportive thoughts your way. You have touched a lot of people through sharing your life and pregnancy with us. Thank you. I just know that you, Drew and Sofia will be fine.

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  10. I read your blog all the time and just wanted to give you a few words of encouragement. I agree with Rania. You are just days away from welcoming a beautiful baby girl to the world. Be mindful of that. I have four kids also (18, 16 year old twins, and 13 year old) and they are my world. It wouldn't matter how they got here, as long as they arrived safe. I suffer from PE (pulmonary embollism) and I can feel your pain sweetie. I've been advise by my doctors that its not in my best interest to have another child. I am so happy that you are able to (and look fab doing it!). You've had some loss, but this is your triumph. Agent S cooked, she just needs a few more days in the oven and everything is going to be A-OK!Have faith and I'm sending all GREAT vibes your way, mama!

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  11. I don't know if I can say anything to make it better, just that you're a really courageous woman and I totally understand how your heart is torn between wanting a certain kind of "normal" pregnancy and birth, but knowing that you can't control that. I wish I could be there for your labor and birth...but I guess I'll have to wait until September when I come out (oh, I forgot to tell you that I accepted the invitation and will be speaking at the Lamaze conference!).

    It's okay to want a certain kind of experience, and to mourn that loss even if it's what helps your baby get here safely. And it's okay to feel that a healthy baby is important but that your experience is important, too.

    Fussy baby, need to go.

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  12. Desiree, I love you dearly and I'm praying that you'll find peace. I know you will. You always get your head worked out. It's one of the things I admire about you.
    Try my tried and true favorite prayer, "Whatever, Lord!" And then wave a white flag.

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  13. (big hugs)!

    I know all the frustrations, and I know everything you want to do and what you want to hear from them.

    My prayers go out that you have a great birth, even if it's not what you thought you wanted, that it's just what you needed.

    I bet you'll be a great advocate for yourself and that can make a big difference in our perceptions of an experience. That you had a voice, you used it, and it was respected.

    All the love in the universe.

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  14. April 11 is a wonderful day to get induced! I know that it feels like a smack in the face and you are doing great at trying to keep it in perspective. The most important thing is that the three of you go home safely. In the end that is all that will matter and how you get there will be an incredible and special journey if you let it be. Sounds like you are in great hands. I am SO excited for you and can't wait to hear your sharp witted birth story -- it is going to be a great one I know.
    love, inB

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  15. At the end of the day it doesn't matter HOW she got here as long as SHE got here SAFE & YOUR SAFE. BOTH of your HEALTH comes first.
    I remember with my second I chose to be induced at 41 weeks. Actually once 40 weeks hit I started to get paranoid that he wasn't here yet. I wanted him out because I knew if he was out it would be safe. I had two friends that had still borns so I was crazy paranoid.
    I wish you the BEST OF LUCK, and enjoy motherhood. It's going to be a new exciting time of your life. CONGRATULATIONS!!!!!!!!

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  16. I wanted to add something to this, but I think everything that has been said sums it up far more succinctly than I ever could. 1. You're going to have a beautiful baby girl in 9 days. 2. You'll be ok, she'll be ok.3Love to both of you

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  17. The fact that you are not "normal" is what makes you so special. Your story has stood out to us as your readers and through your experience we have grown to love and care for you as if we do know you personally.

    You will be fine. Shoot, after my friend did nothing but praise her two C-sections, it makes me want to have one!!!

    You are beautiful and have a great husband. You guys are the makings of fabulous parents!!!

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  18. I hope you can remain positive about things. I know this wasn't your plan for yourself but the docs wanna make sure you have a healthy baby and I know that's your main goal as well. Just think, you're gonna have a baby in your arms soon.

    I was gonna say your gonna be a mommy soon but you're already a mommy.

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  19. I know it's hard, but none of us has a "normal" birth. Everything was "normal" for me until my little boy decided to make his arrival six weeks early and spent 11 days in the NICU with oxygen. We never know how it will happen, all we can do is have an idea in mind, hope it works like we want, and in the end be grateful to be holding our beautiful child in our arms no matter how they arrived in this world. I will be praying for you this week and sending good thoughts your way for a happy day next Monday.

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  20. Hey Desiree- stay positive! Don't let the fear (which is completely NORMAL) get to you. I had a c-section, and while a little uncomfortable to deal with, I don't feel like I missed out anything once they placed her in my arms. Sending you great vibes like everyone else! Listen to Rania!

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  21. Everyone’s covered what I wanted to say. so I give you this.

    HUGE ((((HUGS)))) and know your community here is behind you. Your an amazing mommy- because you care enough to know.. its not just about what you want... and its what’s best for baby and you in the long run!

    You are so normal.. extraordinarily so.


    xoxoxo

    Ro

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  22. In just a few days time, you'll have to change the caption above the picture on your side bar to just the THREE of us...stay the course my dear, you are almost there...You, Drew and Agent S...I love it!!

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  23. As someone who has had a very not normal pregnancy, and survived with a healthy baby, I can tell you with all honesty and experience that in the end you won't care. I look at my scarred belly (yes, I had to have a vertical c-section)... and all I can see is the life that was able to come through me into the world because of this scar. You will have a new normal, and it will be amazing.

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  24. what Makila said! my husband and i were beyond dumbfounded when i went in at 38 weeks on a thursday and the doctors told me i was having my baby by friday of the following week due to IUGR.

    i totally didn't want my c-section and underwent days of labor on my own before my doctor finally induced me (and did the c section when the induction failed). my full term baby weighed just under 6 lbs at birth.

    even though it didn't go according to my plan, everything worked out fine and babygirl is the now the most perfect thing in the world. :)

    there's still a large chance that you won't have to have a c-section. agent s may just decide to come on her own, or maybe she'll come out if induced.

    in the meantime, you may want to get busy (pun intended) finding ways to induce labor naturally. here's a link to some methods http://bit.ly/et9sij

    stay positive, good luck chica!

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  25. As someone who has had a very not normal pregnancy, and survived with a healthy baby, I can tell you with all honesty and experience that in the end you won't care. I look at my scarred belly (yes, I had to have a vertical c-section)... and all I can see is the life that was able to come through me into the world because of this scar. You will have a new normal, and it will be amazing.

    ReplyDelete
  26. I've never had kids either, I have a stepson. You have been incredibly strong and I will continue to send prayers up and positive, supportive thoughts your way. You have touched a lot of people through sharing your life and pregnancy with us. Thank you. I just know that you, Drew and Sofia will be fine.

    ReplyDelete
  27. I've been lurking here for a while, because, well, I'm still in the loss phase of my journey, and I don't have much to say about pregnancy. But I've been following along because, long before I started having miscarriages I had planned a home birth, and yours is the first blog I have found of someone who is trying to keep her pregnancy and birth as normal as possible when dealing with a high risk situation. I don't know how you do it, but I really admire you and I hope I can do half as well at holding on to *some* of my birth preferences, even while I have to let go of others. That is, assuming I am able to figure out a treatment plan that will allow me to carry a pregnancy to term.

    So thanks for your open, honest blog. I followed the links to your previous posts. It really helps to read your back story as well.

    Hope
    InvisibleMother.blogspot.com
    tls_with_woman@yahoo.com

    ReplyDelete
  28. Oh yeah, forgot. You look AMAZING. :) Just thought you should know.

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  29. Desiree, I love you dearly and I'm praying that you'll find peace. I know you will. You always get your head worked out. It's one of the things I admire about you.
    Try my tried and true favorite prayer, "Whatever, Lord!" And then wave a white flag.

    ReplyDelete

When you leave me a comment, my phone chimes. I run to it from across the house, anxious to read what you've said. I save them in my email and read them multiple times a day, which is why you may not get an immediate response but I promise I eventually respond to every comment that has an email address.

You make me smile - I just thought you should know.

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